We work with established organizations (lalzheimersocal memory care facilities, state universities,
and dementia research organizations) and tap into the knowledge of their experts and leaders in the field. Organizations can be found locally, statewide, and nationally. These organizations help support and further our mission in providing excellent service to patrons with dementia and their caretakers.

During conversations and experiences with librarians both locally and nationally, we have discovered valuable information and resources applicable to libraries who are veterans in serving patrons with dementia and those who are just starting out. A list of these resources is found below. Please share your articles, organizations, and resources you have used. We would love to add them!

A shout out to all those who watched our webinar on February 10, 2017. Here’s the RAILS (Reaching Across Illinois Library System) “Serving Patrons with Dementia” webinar presented by Tina Williams and David Kelsey link:


Thank you for all the support. We look forward to hearing from all of you and the great work you are doing!  ~Tina & David

Printable PDF: Organizations and Resources

Partners & Organizations:

Alzheimer’s Association

Alzheimer’s Association – Greater Illinois Chapter: 800.272.3900

Hadi Finerty, Senior Manager, Education & Outreach of the Greater Illinois Chapter. Phone: 815.272.2011 or email:

Theresa Dewey, Manager, Care Navigation & Early Stage Engagement of the Greater Illinois Chapter. Email:

Alzheimer’s and Related Dementias Interest Group (IGARD)

This interest group focuses on creating, disseminating, and implementing guidelines for library services to people with Alzheimer’s and related dementias. You can join their listserv for free.

Alzheimer’s Foundation of America (AFA)

Check out their article on music!

American Society on Aging

CareSmart Illinois

Dementia Blog by AARP

Dementia Friendly America

Effingham Area Alzheimer’s Awareness: Redefining Rural Dementia Support

IGARD: Alzheimer’s and Related Dementias Interest Group – ASCLA/ALA

International Federation of Library Associations (IFLA)

IFLA has already established guidelines and can readily be adapted for use in the USA.

National Center for Creative Aging (NCCA)

National Institute on Aging (NIH)

National Network of Libraries of Medicine (NN/LM)

Not Just Bingo is a great resource for program ideas because it’s written by professionals for senior living activities directors.

The Spark Alliance

US Department of Health & Human Services: Alzheimer’s

Grants: Possible Opportunities
     (Coming Soon: Share Your Resources & Ideas)

*NOTE: If you know of a grant resource for serving this population, please email us! 


Further Reading Resources:

Agronin, Marc E. 2016.  The Dementia Caregiver: A Guide to Caring for Someone with Alzheimer’s Disease and Other Neurocognitive Disorders. Rowman & Littlefield.

Agus, David B. 2012. The End of Illness. Free Press.

Ali, Naheed. 2012. Understanding Alzheimer’s: An Introduction for Patients and Caregivers. Rowman & Littlefield.

Alzforum. May 23, 2014. Art as Therapy – Can Creative Expression Soothe Dementia Symptoms? Alzforum. Retrieved from:

Amen, Daniel G. 2012. Use Your Brain to Change Your Age: Secrets to Look, Feel, and Think Younger Every Day. Crown Archetype.

American Elder Care Research Organization. 2017. Paying For Senior Care. Retrieved from:

Barnard, Neal D. 2013. Power Foods for the Brain: An Effective 3-Step Plan to Protect Your Mind and Strengthen Your Memory. Grand Central Life & Style.

Breznitz, Shlomo and Hemingway, Collins. 2012. Maximum Brainpower: Challenging the Brain for Health and Wisdom. Ballantine Books.

Carper, Jean. 2010. 100 Simple Things You Can Do to Prevent Alzheimer’s and Age-Related Memory Loss. Little, Brown and Company.

Carter, Marcia. November 10, 2016. This Assisted Living Facility Is Designed to Look Like a Small Town from the 1940s. Country Living. Retrieved from:

Carter, Marcia. November 10, 2016. Custom Door Makeovers Give Dementia Patients a More Comfortable Living Environment. Country Living. Retrieved from:

Cohn, Barbra. 2016.  Calmer Waters: The Caregiver’s Journey through Alzheimer’s and Dementia. Blue River Press.

Doraiswamy, P. Murali. 2008. The Alzheimer’s Action Plan: The Experts’ Guide to the Best Diagnosis and Treatment for Memory Problems. Macmillan.

Estep III, Preston. 2016. The Mindspan Diet: Reduce Alzheimer’s Risk, Minimize Memory Loss, and Keep Your Brain Young. Ballantine Books.

Healey, Francie. 2016. Eat to Beat Alzheimer’s: Delicious Recipes and New Research to Prevent and Slow Dementia. Terra Nova Books.

IBM. 2017. IBM 5 in 5: Five innovations that will help change our lives within five years.  IBM. Retrieved from:

Ingram, Jay. 2014. The End of Memory: A Natural History of Aging and Alzheimer’s. Thomas Dunne Books.

Jacobs, Barry J. 2006. The Emotional Survival Guide for Caregivers: Looking After Yourself and Your Family While Helping an Aging Parent. The Guilford Press.

John Wiley & Sons, Inc. 2016. Alzheimer’s and Dementia for Dummies. John Wiley & Sons.

Klemanski, David H. 2016. Don’t Let Your Anxiety Run Your Life: Using the Science of Emotion Regulation and Mindfulness to Overcome Fear and Worry. New Harbinger.

Kosik, Kenneth S. 2015. Outsmarting Alzheimer’s: What You Can Do To Reduce Your Risk. Reader’s Digest.

Kuhn, Daniel. 2013. Alzheimer’s Early Stages: First Steps for Family, Friends, and Caregivers. Hunter House.

Levy, Judith A. 2014. Activities to Do with Your Parent Who Has Alzheimer’s Dementia. CreateSpace Independent Publishing Platform.

Manteau-Rao, Marguerite. 2016. Caring for a Loved One with Dementia: A Mindfulness-Based Guide for Reducing Stress and Making the Best of Your Journey Together. New Harbinger.

McKay, Matthew. 2011. Thirty-Minute Therapy for Anxiety: Everything You Need To Know in the Least Amount of Time. New Harbinger.

McKenzie, Joi-Marie. November 18, 2016. Kittens Help Memory Loss Patients Find Joy. ABC News. Retrieved from:

Melamed, Samantha. January 31, 2017. Interior design choices help Alzheimer’s patients cope. Herald & Review. Retrieved from:

Miller, Stephen. 2014. Communicating Across Dementia: How to talk, listen, provide stimulation and give comfort. Robinson.

Newport, Mary T. 2013.  Alzheimer’s Disease: What If There Was a Cure?: The Story of Ketones. 2nd ed., Basic Health.

PBS. January 25, 2017. Alzheimer’s: Every Minute Counts. PBS Video. Retrieved from:

Public Library Association. 2016. Memory Care and Technology: Innovative Ideas to Reach Senior and Alzheimer’s Communities. Public Library Association. Retrieved from:

Reader’s Digest. 2015. Brain Power Cookbook: 175 Great Recipes to Think Fast, Keep Calm under Stress, and Boost Your Mental Performance. Reader’s Digest Adult Trade Publishing.

Seipel, Tracy. January 4, 2017. “Diagnosing Alzheimer’s: Medicare now pays doctors to stop and assess memory loss.” The Mercury News. Retrieved from:

Shouse, Deborah. 2013. Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey. Central Recovery Press.

Small, Gary and Vorgan, Gigi. 2012.  The Alzheimer’s Prevention Program: Keep Your Brain Healthy for the Rest of Your Life. Workman Publishing.

Spotlight on Sharing Webcast. January 25, 2017. Memory Care at the Library. Colorado Library YouTube series with Deborah Gonzales from the Arapahoe Public Library. Retrieved from:

Sutton, Amy L. 2011. Alzheimer Disease Sourcebook. 5th ed., Omnigraphics.

Williams-Paisley, Kimberly. 2016. Where the Light Gets In: Losing My Mother Only to Find Her Again. Crown Archetype.

Waterford Today. “Focus on Dementia – Making the Most of Technology.”

Williams, Tina. 2016. Serving the Older Adult Community. American Library Assocation Intersections Blog. Retrieved from:

Witchel, Alex. 2013. All Gone: A Memoir of My Mother’s Dementia, With Refreshments. Riverhead Books.

Zeisel, John. 2009. I’m Still Here: A Breakthrough Approach to Understanding Someone Living with Alzheimer’s. Avery.

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